About Us

When my daughter was diagnosed with classic galactosemia in the winter of 2025, I felt completely overwhelmed. It was the first time I had ever heard the term galactosemia, and I knew absolutely nothing about this ultra-rare genetic disorder. I spent many sleepless nights scouring the internet and reading research papers on children's health education. I spoke to numerous parents of kids with galactosemia and reached out to various medical providers and researchers in the field. I quickly realized that while there was an abundance of medical information available and a very tight-knit online community dedicated to galactosemia awareness, there were very few resources specifically designed to help children truly understand their condition.  

When I couldn't find the tools and resources I was looking for, I decided to create them myself. I want my daughter to grow up with the knowledge and confidence to make smart dietary choices and to explain galactosemia to her friends, teachers, classmates, and others around her—not only so she is understood but also so she can feel empowered rather than defined by her diagnosis.  

GalactoKids was born from a mother's desire to make learning about galactosemia engaging, age-appropriate, and empowering for children and their families. My hope is that these resources help kids build confidence, encourage meaningful conversations, raise awareness, and remind families that they are not alone on this journey of support for galactosemia families.  

If something I create helps even one child feel more seen or one parent feel more supported, then GalactoKids has fulfilled its purpose.